SPONSORED!!! Thank you so much to our sponsors! Patrick's Critter has been created and delivered to him. Patrick will be 4 in March. He has complex medical history with little answers. He has hypoglycemia as well as severe food intolerances. He is formula dependent. Hopefully he will be getting a continuous glucose monitor very soon! Despite it all he is bright and funny. He loves school, trains, paw patrol & family.
Sisters A and S's, 6 and 3 years old, Mom writes: my girls are dealing with a lot right now. My 6 year old has severe eczema and a long list of food intolerances and we just found out that my 3 year old has sensory processing disorder- they both have yeast overgrowth. We are currently working on healing some of these issues with the GAPS diet. They both have such kind hearts and love spending time outside but with the sensory issues we haven’t been able to get out much. We’re looking for an OT now and are hopeful we’re on the right path.
Lylah is a sweet and energetic soon-to-be 4 year old. She loves to draw and make cards for other children who are sick. Making sure to put lots and lots of stickers on them!
From a quick glance you would never know that Lylah is "sick", she suffers from multiple food allergies and suffers from Eosinophilic Esophagitis (EOE). Lylah relays on her G tube for her primary source of nutrition, however, she does have apples as a safe food, which she loves! Because of her EOE Lylah has to get regular scopes to keep an eye on her health and see how she is tolerating foods she is trialling, so far in her short life she has over 9 scopes.
In all other ways, Lylah is completely healthy. She can run, walk, and talk. She loves to do summersaults and run around with great energy like any other 3 year old. She just can't eat like everyone else, which is really hard since everything seems to revolve around food these days. Holidays and birthday parties all have yummy treats that she has to miss out on. Throughout all of this, Lylah is a trooper and understands her family is doing everything in their power to get her better.
McKeon is an amazing kid! He loves life. He's energetic and loves building anything possible. He fancies himself an engineer and has a bright future. McKeon carries an EpiPen for his allergies, he currently has 6 trigger foods which is amazing since he used to have over 60! In addition to the food allergies, he has seasonal allergies, difficulties with animals and chemicals, Eosiniphilic Esophagitis (EOE), laryngeal malacia, and reactive airway disease. McKeon has 3 siblings, together they have learned from each other how to advocate for the safety of themselves and other loved ones.
Maggie Rose was 3 years old when she was first diagnosed with failure to thrive. In Feb of 2005, she had an nissen and g tube placed. In 2006, she had half her thyroid removed. Maggie Rose also has asthma, a rare skin condition that the doctors haven't figured out yet. This past year 2016 she saw a new endocrinologist at that time an ultrasound was done and wanted a biopsy asap, in July 2016 Maggie Rose was diagnosed with papillary carcinoma thyroid cancer. Her thyroids was removed in July 22, 2016 and radiation I-131 was given in November 9th of 2016. Maggie Rose also has asthma, a rare skin condition that the doctors haven't figured out yet. Maggie Rose is on daily meds and feeds but no matter what my 14 year old is always smiling.
Taryn is a delightful 3.5 year old. She currently has no safe solid foods but thrives on a mix of Neocate infant and Puramino. Taryn has FPIES, EoE, MCAD, CSID, as well as, several other suspected diagnosis. While Taryn might not be able to run around for quite as long as other children her age, that doesn't stop her from being a wonderfully delightful little girl that loves to have fun. She also has a special furry friend named, Hennessy, who cuddles with her when she isn't feeling well and goes on adventures with her when she is.
Brady is non-stop crazy fun! He loves sports, is always talking, telling fun stories, and coming up with new adventures. He is a real life Dennis the Mennis (according to his mom). Despite any mischief he might get into, everyone who meets this amazing 1st grader adores and loves him. Brady has FPIES and MCAS, he currently has 7 safe foods (apples being his favorite!) and drinks Neocate Splash to help keep him nutritionally complete.
Kason is very bubbly and does what he can to make you laugh or smile. Kason has a rare brain malformation called pachygyria and polymicrogyria. Because of this, Kason also has cerebral palsy and epilepsy. He's delayed in speech and most gross motor skills. However, for only being two, he's very observant and tender hearted. He knows when someone just needs a hug or a touch. His therapists all comment that when he learns a new skill or word, it really sticks, as he's a child that really takes the time to 'study' something before he attempts. Despite not being able to walk, that doesn't slow him down. Kason gets around by scooting and rolling to wear he needs to go! You can follow Kason's Journey on his Facebook page .